Global Awareness Campaigns for Dravet Syndrome – Advocacy and Policy Initiatives
Raising public and healthcare provider awareness about Dravet Syndrome is essential for early diagnosis, research funding, and improving patient outcomes. Advocacy organizations worldwide are leading global awareness campaigns aimed at educating communities and policymakers.
Key initiatives include Dravet Syndrome Awareness Month, international epilepsy awareness days, and social media campaigns that share patient stories and highlight treatment advances. These efforts have improved recognition of Dravet in primary care and neurology settings.
Policy initiatives advocate for expanded insurance coverage of novel therapies, increased funding for rare disease research, and integration of genetic testing into newborn screening programs. Collaborative networks also work to establish standardized care guidelines and patient registries.
The growing momentum of these campaigns contributes to destigmatizing epilepsy and improving support services globally.